“These were things that were just so inhumane to us,” says Amanda, who is on leave from her job as a teacher to care for Eric. “It was almost like treating these patients like lab rats… We were like, ‘Okay, we need to try to make a change here and fix the problem.”
For those who want to help, Amanda and Eric have written an email template that can be sent to local representatives in support of the bill, and they also encourage calling or attending meetings. There is also a petition to support the bill, which can be signed here.
Meanwhile, as the race against the clock ticks on, Eric is continuing to keep his chin up in the face of adversity.
“I think the support I have around me, my friends, my family and Amanda are a huge help and a huge contributing factor to how I stay positive,” he says. “And now we have a baby on the way, it’s just more and more fuel to keep going and to keep fighting.”
“I think you have two choices: to keep going, keep grinding, or give up, and I’ve never been one to give up,” he continues. “And so I’m just going to keep fighting and do everything I can. And if it doesn’t help me, hopefully it helps the next person down the road that gets diagnosed.”
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